Hi, I wanted to ask if they can re-post this, and who can work with something.
is a family of Cordoba (Argentina), whose son Augustine, 14, was diagnosed with a disease (adrenoleukodystrophy) that affects the myelin of the brain degenerate with a speed that can not be controlled, leaving the guys that have ridden without a vision, hearing, speech, loss of consciousness and in a vegetative state ...
The disease is transmitted from father to son as a genetic trait linked to chromosome X. Therefore, it mainly affects men, although some female carriers can have milder forms of the disease. In this case, after the diagnosis Augustine's studies were his two younger brothers ... and also gave them positive. In the U.S. alone
there is a clinic that has developed a treatment, 50% of cases, managed to reverse the disease. In the rest of the world, all attempts failed.
Of course, the cost is high, U $ S 1,000,000, and most disadvantage considering how the change in our country (4 to 1). To this we must add the costs of travel, stay (there are at least 4 months of treatment, etc.).
They are doing a lot of collections, festivals, official procedures of all types, and time is running out (there are no more than two or three months for surgery can do).
While a case that has already taken public through the media, I happened to know by a direct relative of the family, and I know the anguish they are experiencing, because despite the great energy that they spend and all the support they receive, are still far from raising the money required.
And only the first. They still have two more children with the same diagnosis.
So I ask to work, albeit very little, it all adds up. This link
out all data, you can contribute to bank accounts or through internet.
http://www.unmilagroparaagustin.com/
Sorry for the downturn, but please at least pass the link to circulate.
THANKS.
PS: for those who saw it, is the same disease of "A miracle for Lorenzo."
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